PLEASE PRAY FOR KENADIE

Hey all. We are in need of some prayers. Kenadie is in the ICU in dallas texas. She kept having brady spells. Please pray for an answer!

Can we just get the surgery done!?!

Hello.. this could be a lengthy post. I warned you ahead of time! lol

Hello all! We are all alive. It has been one major rollercoaster. So my last post i said that ms k could not have her scan done bc her tummy was so freaking slow. We went to it on that tuesday and got word that her gut is slow. Well what more did they expect. Her stomach is 92mls big. (really for those not in the med field that is a bit over 3oz) so not enough to sustain life really for her. So we are moving to the j tube. One of these days. When.. I have no idea. Then the missy wanted to throw in a special side of hers. Her d tube and jtube are supposed to be lovers essentially.. well a piece of intestine connects them. .So the "threesome" as her gi calls it is not so awesome as it slows things down tremendously as she grows. Can they fix it you ask? No the risk outweight the benefits right now. So we will continue with our plan of the tube and then press on with the 92mls during the day. Yes she will have her little pump going. But hey that is fine. I had a great emoitional break down as my goal for her going down there was to come home tube free. Instead we learned the missy has to have it for long term outlook now. But would i expect anything different from the diva. Nah. We also have deemed her Jill's diva. If you knew jill and her heart bling.. you would get it! LOL. Love ya jill! She is my diva when she is being a good girl medically!
So we are home now. We came home about 1.5 ago. I got into a disagreement with k's caseworker who wanted to put her on a med that possibly could cause respitory distress. Oh she says there is a minute slight chance. OKay folks i know i dont have to tell you how minute chance she had of going into chf was. So i kindly well not so kindly told her umm NO! So she says well since y ou dont want to try this then you can go home thursday. Oh yes mam! I am going! Plus they said we need her bed.. wth! eh whatever! Same folks that said they would call cps (oklahoma's dhs) on me if i would not allow a nj down her. Btw i won that battle and told them exactly what they could do with putting my name and cps in the same sentence. If every abused child was loved as much as kenadie they would not have a fing job.
Right now we could use some prayers. We are really struggling right now. My work check did not come out to be like it was supposed to. So if you know of any national resources or local then please send them our way. We are also debating on applying for the homemake over show. Our foundation is going to crap. And obviously no way to fix it at all!
oh and please keep the diva in your thoughts.. (as if i had to ask that) she has had cold clammy sweats 3 nights in a row. I am calling her pedi monday!