What a few days it has been!

So, the weekend went by with a few hesitations it was good. Kenadie decided to show her ms d that she can show off still. Causing a good desat with her oxygen. Ms D told her lets act like a lady and keep those antics to herself. ;) lol. A few times gagging and one or two times trying to vomit but overall she has behaved. I am learning that when her tummy is starting to look like she's had a keg its time to cut off the food for a few hours and give those intestines a chance to do their job.. as lazy as they are at it though.
I called monday to talk to dr s in texas. I got our favorite nurse ms t. She is so sweet god bless her one day please! :) She listened and talked back but she loves ms k like her own grandbaby she said well we will just have to tell dr s what is going on with the love bug. I also told her how mean the resident was on the phone to us when she was having her enemsis issues. That it turned out to be an obstruction. Love it when the resident told me she could not poop if she had an obstruction. Ha she proved you wrong! Anyhow. She told me dr S would be calling me back in a day or two. Here i sit on Wednesday and we have not had a phone call. hmmph! We go back down south april 26 for kenadie's cardiac clearance for her gi study. So i know we will see him then. We are the only one who he lets just drop in clinic. :) Anytime we are in town he said YOU BETTER COME BY CLINIC SO I CAN LAY EYES ON HER DO YOU UNDERSTAND ME?! yes he was loud about it too! Unique guy. I just dont want to wait till then.
So today... one of kenadie's nurses who we liked site on sceen quit. No notice no nothing. Just called the agency and quit. I knew it was too good to be true to have a weekend nurse who we actually meshed with. She was so good with kenadie too. We were her first ambulatory case (mobile not bed bound). So needless to say I am irritated.
On a personal note. I got my class completed that I needed to complete. Finally. I handed in my papers and asked when my grade would be available. He said all you need to know is you passed! HECK FREAKING YA! Then he is the same professor that i have for college algebra. So he knows my situation and all that yummy stuff. I took one quiz today and got an 80% on that without cracking a book or stepping in his class. So yay me! Also if the stars line up.. I might get to have a night out with my husband alone. Our family friend sheshe is going to come watch k and her sisters for me. So we might go to a bnb. Not sure yet. We had one great experience at one in texas and would love to go back again. I just know we need 1 night together.. Have not done that in too long.

What a month this has been!

So far the month of march has been hospital month for us. Kenadie was admitted to the hospital on March 6. She had gotten a stomach bug, when we took her to the er her numbers were crazy and the liver decided to throw a tantrum. So we stayed got fluids. On the 7th I proceeded to get sick in her room. Vomitted my little self up. Thank god for a script left from my hysterectomy to get me through the vomitting. The nurse was so sweet that night. He helped me alot. Ms sheshe (a close family friend) came up and saved my day too. She let me vomit and die in misery! lol. K did well but she would not tolerate her feeds for a few days. We lost many iv's and had many blood draws. The count came to about 21. She got discharged on friday afternoon about 6pm and we went home visited some family and went to bed. Saturday morning she woke up. Pale and tummy looked rather big. I knew that things weren't going to go well. We still went on with our day. Then at 7pm my husband calls me to say that she is vomitting. Crap! So I come home tell nurse C that to watch her if she vomits again we will go back. She vomitted again so we went back. They said she is not going anywhere. This time we had a full obstruction in her jajunem (sp?). So we weren't going anywhere fast. They called dallas to see what our gi wanted to do. Since ours was not on service it was a tossup of who would take care of us. Dr S wanted her down there but i have a feeling that Dr Salesman made his pitch so we could stay. We had to wait it out. It was not fun at all for kenadie. She loves to eat! So if you had something you had to leave her room. Dont even bring a drink in. It was not fair to her. We got moved to a big room and enjoyed our little "home". Well as much as you can. You learn to do what you have to do to make the best of it.

We made some special friends up on the ward. She has a rare child also. His name is Rich. Please keep him in your prayers that God will heal him or not let his intestines bleed for a very long time! He goes through quite a bit of blood! So donate people please! :) When you make a connection in the hospital you almost feel normal. Like your child is fine. They know the challenges that you face.

There was another situation that was brought up to me while in the hospital. My family member not dealing with kenadie's issues. Please know I wont do just peaches and cream news. I can't. I dont get it that way. It hurts that some can't accept her for what is going on. I may be wording it wrong as accepting but I know that they dont like to acknowledge what is going on. I have to face the music 24/7/365. Deal with the naysayers coughs her old pediatrician.. WHERE IS SHE NOW!!!!!!!! Sorry had to get that out. Then my 3yro alexus does not want to be at my house at all. She says its not my house she thinks granddads is her house. Its where she feel stability at. Genesis likes to be with us but come night time she doesn't. She wants to sleep somewhere else where she feels like wont change. Where are they when all of this is going on? OR just ask.. how are you guys doing?! Personally i thought family banded together when the rough times start going. Am i wrong for thinking that?!

On a personal note I passed 2/3 classes and completeing the other one this weekend. I am now in clinical labs, doing a&p, and college algebra. Most of my professors are very understanding and have taken a personal interest in kenadie. I just pray I can do this and I dont get taken off the right track!

Trying to go back to blogging again!

I am going back to blogging again. I decided to change my url back to the same. I am not going to let some drama sway me from MY journal of how I feel. It is MY blog. My time to vent my feelers. Please know when i type. I am not thinking of who might get offended or what not. I am typing my feelings. I am going to try and keep some names anonymous due to some family possibly reading it. But other than that. My mother can attest I am a straightshooter and if I dont like something I will make it be known. My blog is going to talk about my children (living and my angels), marriage after having a special needs child, life, death, family issues, anger, and medical stuff with my daughther. Please know i have a sailor mouth. Far from clean. lol. But I am working on getting it better.

Now if you have any questions please email me at hancock _ alisha @ hotmail . com (without the spaces).