Sunday, November 30, 2008
Our update for today
I am really considering going to pumping exclusively. Just because she gets tired at the breast and we can not track her real input output like her heart doc needs. I just can't make that decision. It is so hard. I really dont want to have to pump all the time. But dont want to have to do formula at all costs. I just dont know.
As for me. I am much better now that the doc assisted me with some medication. I am not as emotional and feel much better about the situation. I am very nervous for our cardi appt on Tuesday. I am so nervous everytime they have a echo and stuff. I just want to get it done and over with. I hate that cloud hanging over me. It SUCKS! But yeah. Well i will update more tomorrow. Hopefully home before christmas!
Tuesday, November 25, 2008
So i have to say i was right
I did call her pedi and talk to her and she did not know what was goingon. Thank goodness i listened to my gut.
are you serious?
Monday, November 24, 2008
NO PEDI???!!
Kenadie gained some more weight last night. So that is good. She is starting to look a bit chunky in the face. Funny since we haven't even gained a lb but she looks chunky to me. lol. We are finally in newborn clothes. They hang on her but the most of her preemie clothes are too short. The newborn ones are too big and too long but what else to put on the kid when we can. kwim. She had some breathing problems last night. And has this morning and the resp therapist is no where to be found either. Finally our nurse came to let us know they are waiting on the pharmacy to send her meds up to her.
well that is our short update. once i know some more i will try and update.
Sunday, November 23, 2008
Today's update
As far as me.. I am doing okay. I am going to go to the ob this week and talk to him about ppd. I think the mixture of everything going on is what is kicking my tail. I am starting to snap at any little thing that my dh does or anyone else. Plus i think that some people "try" to help and it just kinda insults me. Like some comment.. "is it something you took in pregnancy?" "was it your injections during pregnancy?" I mean COME ON?! Don't think i am struggling enough with a sick child?! Okay that is my rant.
Thanks so much for the prayers.
Saturday, November 22, 2008
Today's update
Thursday, November 20, 2008
Well i guess i knew our steps backwards were coming!
We might get moved to the bigger hossy that has the cardi doc there. That bums me out bc i dont like the hospital or anything. I know the docs are great there and well versed but i dont like their medicine team too much. So we are praying we get to stay here until it is vital to move there. I mean i will do whatever we have to do when we need to do it.
My doc called for a lactation consult. They wanted lactation to talk to me about pumping and then about drying up if need be. Right now i am just an emotional bag and really did not want to address it. I will deal with it when i need to. kwim. Not pertent to me right now. I am pumping every 3-4hrs and i can get anywhere from 10-18oz per session. So no worries on that part. I also have about 300 oz at home in the freezer. So not worried. If i dont get to use it i will donate it to the breast bank.
Right now i am more than just upset. When we think we are doing something good and moving forward. We get set back to like negative square one. I just want to take my baby home. I know people have bigger issues out there and what not and they have longer stays in the hossy. (this damn nurse keeps saying that to me.) I am not trying to be selfish but this is a big deal to me and my family. kwim. Well that is about it. Thanks so much for all the support. If something happens i will update. Thanks again!
Today's morning update.
Oh they are going to try her feeds every other hour now through the tube with hmf in my breastmilk. This is her test to see if we can continue breastfeeding. If not then this momma is going to dry up. I feel like my life is connected to a pump right now and i HATE it. It would be different if i knew that she would be able to feed again and would be using it. Right now i am in limbo! I am so tired and worn down. I dont want to leave the hossy bc she can do so good one minute and a few minutes later just be vomitting and what not.
well i think that is about it. i am going to take a nap before my fil comes up to see us.
Wednesday, November 19, 2008
Today's update
The girls came up for a bit also. They went to school today and had so much fun. Well i am feeling really run down and i need some strength and sleep.
Tuesday, November 18, 2008
Surgery in 2weeks to 2mths.
I got to see the girls today. No fevers so i had dh bring them up to see me. They were not allowed to get close to the baby but they got to see her and watch the nurses take her temps and give meds. Genesis thought that was so cool. Alexus told the nurse NO NO NO HURT! Then we took the girls down to the playroom here and then watched a video. Then i took them back to my grandma's. Genesis asked me why we can't sleep at our house with baby kenadie. I tried to explain.. She was like momma i love you and i miss you. God my heart breaks. I just dont know i can do this for 2mths. Alexus told me "BYE MOMMA! HAVE FUN!" As long as she has toys and her granddad she is all good.
The financial councelor came in today.. I am hoping we can get a bit of help with all this stuff going on. They are going to help me fill out the forms.
That is about the update for now. They are going to reaccess her bronchitis tomorrow and then decide if she needs antibiotics and an IV.
Today's mini update
Now for the steps back.. she now has bronchitis.. which is NOT good. Then the pedi said she could feel her liver and spleen today. That is not a good thing. So we are praying that we dont get stuck at OUMC CHO. But she is concerned bc her respirations are faster than what they are supposed to be. We willbe having another echo when we go and see the doc today. WE go at 1pm cst.
That is about all i know for right now. I will update more later as i know more.
Monday, November 17, 2008
Two steps forward and one step back
Our step back is she lost all the weight she had gained since Friday. :( We don't know why she is not holding her weight. She is back down to 5.6 now. Very frustrating.
They doc is having us go to the cardiologist this week. She will get a little ambulance ride there and then we will come back here. They want to look at her ticker again and see if her lasix is causing her issues. She is also going to have an u/s on her hip next week. They are concerned about hip displasia and if so then they will decide what to do about that.
Her pedi did tell us that she is going to keep rounding on her. They usually switch docs every Friday but she said since she is a complicated case she would feel more comfy taking care of her by herself. Her pedi is rather frustrated btw with her situation.. She walked in this morning and goes "kenadie you could at least maintain your weight girl and make me look like a good pedi!" I just laughed bc she was this way when she was in the uterus.
My other two girls are doing much better. No fevers or anything anymore. So if they are better tomorrow then i might let them come up. The pedi said 48hrs no fever and they did not have one yesterday evening so we shall see. I am going to go see them this afternoon since the pedi said i could and i just have to make sure that i sanitize sanitize.
Me personally i am just an emotional bag. I want to be at home with my family and enjoy my new baby. Instead of going to see friends and family with my baby we are stuck in a hossy and dealing with this stuff. I want to be able to bond with my baby and be able to breastfeed her but nope got deal with the tube down her nose. I am also emotional bc the holiday season is coming up. I dont know how i am going to handle all that. The medical bills are killing us right now. We no where expected to have to pay all this out of pocket. I do know it will all work out and my girls will be taken care of somehow. It just sucks that i am their mother and i just feel like i am not doing my job good enough for them. This just sucks! Well i will update when i have more info to update on. I think her GI will be coming in soon.
Sunday, November 16, 2008
Our update for today
We need prayers for my other two girls as they are sick. They have high fevers, chest congestion, and just plain dont feel good. They have a virus per their pedi. Which is NOT good at all for Kenadie so they are having to stay away and i am not allowed to be around them since I am the primary one that is taking care of her. So we need some healing vibes for them so they can come see their sister and i can see them.
I also want to let you people know that i appreciate all the support and prayers, the emails, and everything. I have a great cousin who keeps pouring out her suport even though she is like 1wk post partum herself (yes she had her baby.. about a wk ago.. 10lbs 4oz 23inches long) then my grandparents i swear are angels themselves. they have offered to take care of my girls for us. part of this does not surprise me as they have taken care of them since they were tiny babies themselves when i had to go to work. I will check with my cousin to get her permission to share a pic of kenadie and her cousin together. They are so cute! Double K! (his name starts with a K) Well that is our update for today. I will try and hop on this weak internet connection when i can and update. THANK YOU SO MUCH!
Saturday, November 15, 2008
today's update
Friday, November 14, 2008
Back in the hossy
Thursday, November 13, 2008
Kenadie needs more prayers!
Also my girls are sick with colds and i need some potent healing vibes. Kenadie can NOT get sick at all until the holes in her heart closes or we are right back in the hossy again! Well i will update tomorrow.
Wednesday, November 12, 2008
Kenadie's update! (same as pal)
Now today we had to go back to the pedi. We have not gained weight in 5 days, jaundice went up 3.5 points today for a level of 13.9 which i must say is DA@$ frustrating bc we were on hossy lights also. ERGH! So now we have to go have a liver u/s done and the hossy did not test liver function so my pedi had to draw up bw for that also. Now i must say i HATE U/S the last one gave us news i would have preferred to live without. So just wondering if you could spare some prayers for the liver u/s. We have to do weight checks eod and billi checks eod also.
I just recieved a call about her u/s for liver. Tom morning at 830am is when we will have it and doc should have the results come our 2pm appt. She also has the bw in and she is going to call me on her lunch hour. So i am praying for good news.
Sunday, November 9, 2008
Kenadie is in the hossy NEED PPT!
Thursday, November 6, 2008
Tomorrow is the day and an update!
Kenadie also had a big day after the docs. She went to go see my cousin that is having a baby very very soon (like by Saturday). Btw i can't wait till she has her little man.. Any easy labor vibes will be accepted and shipped her way! :) Then Kenadie went to my job with me to turn my fmla forms in. She got to see all my residents there. They looked her over a million times. Thank goodness they all did not try and do neuro exams on the poor kid! LOL. jk! Then we came home and had a big nap. Mom and baby were so tired. :)
My incision is hurting so bad tonight. I am a bit afraid of infection as it is so sore and part of it is warm to the touch. When i am at the docs tomorrow i am going to have them peek at it to make sure it is fine and dandy.
Please say a prayer for Kenadie for her appts tomorrow! Thanks!
Tuesday, November 4, 2008
Kenadie's Birth Story (Really long and copied from pal)
Hey everyone .. Finally getting a minute to post her story.
Short version: 10/27/08 753am 5.37lbs 17.25 inches
Long version: So I went to the doc 10/20 and they said she was frank breech and that we would try a version on 11/11 and then do an induction. At that appt i told him something was not right something was wrong. He checked her fluid and said she is fine from that aspect but did not have a u/s tech to check growth or placenta. Told me to come back on 10/27 and he would have them do it. To keep an eye on fetal movement and what not. Okay great. So 10-26 i had an odd feeling that day.. like tons of anxiety.. even on friday something did not sit well with me. and i completed almost everything at work and they said i would have her over the weekend bc of the way i was acting. So back to 10-26 i had contrx for the most of the day.. did not think a thing of it since well you ladies know my history my uterus does not shut up! lol. Dh and i went and got my mom and we took the kids to haunt the zoo.. we even joked around about what if i went in labor there. well contrx were slamming me every 1.5mins but again thought nothing of it. We had tons of fun with the kids and my mom. When we were done i told my mom .. something is not right.. kenadie is not moving alot. She says go home lay down.. drink something sugary and see what happens. So on the drive home i told aaron (dh) that i had this weird feeling we would have her tomorrow. He said yeah right and laughed me off. Well we get home i do my macro econ exam and have huge anxity.. like crazy. I told my dh i was going to bed now that i felt kenadie do a dance and was fine. Well i went to bed.. had a nice little dream that included an O. *blush* I woke up when dh's alarm went off for work and felt wet. Thought it was from my nice little dream.. and told dh to help me roll over that my hips hurt and i think i need to go pee. I roll over and gush in my bed. I told dh umm i think my water just broke or i peed on myself. He said yeah right.. prob just exaggerating again. Then i sit up in bed.. GUSH! Umm hun my water is broke... still does not believe me and my 4yro is now awake and tells me i need a spanking for peeing my panties. I stand up niagra falls happens.. really dh believed me this time! It soaked my pants, sock, the floor. I went pee and was in a bit of denial..then i stood up and niagra falls the 2nd happened. Thank god i put on an overnight pad! lol. I told dh i would drive myself.. yeah did not sit well so i called my mom bc i could not get anyone else to wake up to answer their phone. I come on here let you ladies know niagra falls happens and we are off to hossy. I talk to the oncall on the drive she was a pia.. The one i HATE! I about kill my mom in the car due to the pain of the contrx. I thought iwas going to DIE! I get to the hossy not a damn wheelchair in sight! So i steel a valet chair. With a towel under me bc now my pad is full and overflowing on my pants. We get up to LD and the lady at the desk says "are you in pain?" NO SH#$ SHURLOCK! then she says "are you sure you did not pee on yourself?" lady if i have this much pee we are really in an emergency situation.. your bladder not supposed to do that! The lady walks me down to my room and i leave a water trail. (what she gets! ha!) I lay in the bed the nurse comes in and goes now how do you know she is breech? Umm just xray vision? I had an u/s! Well i was dilated to a 3. (big shocker.. had been for the longest!) And she could not feel the head.. although she tried and tried. I swear i am still sore from that! I ask her for pain meds she says wait on doc to call. U/s comes in and verifies position and the room starts moving pretty fast. The u/s nurse goes what is wrong. i am in pain.. she says hun labor is not meant to be fun and unpainful. Oh ladies i about kill the nurse! The nurse made me labor for almost 3hrs with NO DRUGS AT ALL! Knowing i was a freaking C! ERH! They finally roll me back at 730am get the spinal and some drugs.. AH! The doc starts cutting me..reaches in, has to stretch my muscles and tells that this is really going to hurt bc they dont usually have to cut and spread this far and then says omg..(not what you want to hear)then says alisha she is really small. Okay let me see dude. then pulls her out butt first and she is just this peanut..as my ob pulled her out he says alisha she is so tiny and a peanut! They wisk her to the nicu team and daddy. No one would tell me what was going on with her.. I could hear her cry so that kept me calm. Then nicu nurse comes and says here mom give her a kiss and off they went. Doc kicked my mom and my dh out bc i started hemorrhaging. He finally got that calmed down right before they put me under and then did my tubal (thank god!, i threatened him before the surgery that i would tie him to the bed if he did not do it!). While accessing my child and my placenta.. they determined she stopped growing somewhere about 34.5-35wks.. she had dangerously low glucose levels. they put a tube down just to get it down her bc they could not wait for her to suck on a bottle. then kenadie could not do the suck,swallow, breathe thing due to her being early and her growth stopped. but we got right on top of trying and they watched her like a hawk. They also said her jaundice levels were pretty high at day 2 and kept creeping up. 15 when we were dc. The day of dc the nurse comes in to tell me that kenadie has a murmur and they are concerned about this. She gives me the worst scenarios.. I was poed bc the doc did not say a thing. Come to find out the doc did chart it down but was going to tell me at the appt if it were louder. Alot of preemies have this issue and it goes away around day 3. The nurse took it upon herself to say something. So Friday they said it was worse but she is gaining weight and the jaundice was still at almost 15. The pedi also informed us had we waited till 11/11 we might not have had such a good outcome. So i guess my uterus was smart for one day! :)
Again so sorry for keeping you everyone hanging.
Here are her pics of the first week of life so far! :) http://s182.photobucket.com/albums/x185/alishaandaaron/Baby%20Kenadie%20Gayle%201st%20wk/
Today's update!
Alisha


