Hey ladies. We are home from the hossy. We got released late yesterday evening. She has an ASD and a VSD ( one hole at the top of the heart and a hole on the bottom part of the heart.. which that is the trouble maker) The bottom one is causing pressure on the right side of the heart and it is 5mm.. which is small to us but a baby that is only 5lbs it is huge. So we are on two heart meds and we go to the cardi every two weeks and have echos every two weeks until she is 8-12wks old then we decide heart surgery or not.
Now today we had to go back to the pedi. We have not gained weight in 5 days, jaundice went up 3.5 points today for a level of 13.9 which i must say is DA@$ frustrating bc we were on hossy lights also. ERGH! So now we have to go have a liver u/s done and the hossy did not test liver function so my pedi had to draw up bw for that also. Now i must say i HATE U/S the last one gave us news i would have preferred to live without. So just wondering if you could spare some prayers for the liver u/s. We have to do weight checks eod and billi checks eod also.
I just recieved a call about her u/s for liver. Tom morning at 830am is when we will have it and doc should have the results come our 2pm appt. She also has the bw in and she is going to call me on her lunch hour. So i am praying for good news.
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7 comments:
of course i will continue to pray for sweet little kenadie!! poor baby, poor mama!! hang in there, alicia, and know that god has a plan and he is in control!! he is bigger than all of these problems and he is faithful to hear our prayers!! (((hugs)))
sending you many positive thoughts for that cute little baby. I am very glad that you are getting all the docs to listen and get her all checked out. I hope she gains weight soon.
I'm praying for your guys!! Hoping all that nutrition is getting used up to help her heal rather than putting meat on her bones! Ollie wasn't gaining because they never told me how MUCH to feed him til he lost a bunch of weight! At least she isn't losing, just putting it to better use like I said but double check with pedi she doesn't need more yummies! Maybe she just wants a big steak :)
luv ya!
Sending P&PTs your way for Kenadie! Sorry you have to go through this. ((HUGS))
Just wanted you to know I have been thinking of all of you:) Glad to hear you are home!
Oh....
thought I should tell you who I am :P
Heather, mom to Maya from SF playgroup
Praying the liver u/s comes back normal! HUGS sweetie!
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