Two steps forward and one step back

Essentially we are on the NICU theme. Two steps forward one step back. So our two steps forward and great news is that he jaundice is 12.7! That is awesome. We are down 4 points in one day! we are so happy about that news.
Our step back is she lost all the weight she had gained since Friday. :( We don't know why she is not holding her weight. She is back down to 5.6 now. Very frustrating.
They doc is having us go to the cardiologist this week. She will get a little ambulance ride there and then we will come back here. They want to look at her ticker again and see if her lasix is causing her issues. She is also going to have an u/s on her hip next week. They are concerned about hip displasia and if so then they will decide what to do about that.
Her pedi did tell us that she is going to keep rounding on her. They usually switch docs every Friday but she said since she is a complicated case she would feel more comfy taking care of her by herself. Her pedi is rather frustrated btw with her situation.. She walked in this morning and goes "kenadie you could at least maintain your weight girl and make me look like a good pedi!" I just laughed bc she was this way when she was in the uterus.
My other two girls are doing much better. No fevers or anything anymore. So if they are better tomorrow then i might let them come up. The pedi said 48hrs no fever and they did not have one yesterday evening so we shall see. I am going to go see them this afternoon since the pedi said i could and i just have to make sure that i sanitize sanitize.
Me personally i am just an emotional bag. I want to be at home with my family and enjoy my new baby. Instead of going to see friends and family with my baby we are stuck in a hossy and dealing with this stuff. I want to be able to bond with my baby and be able to breastfeed her but nope got deal with the tube down her nose. I am also emotional bc the holiday season is coming up. I dont know how i am going to handle all that. The medical bills are killing us right now. We no where expected to have to pay all this out of pocket. I do know it will all work out and my girls will be taken care of somehow. It just sucks that i am their mother and i just feel like i am not doing my job good enough for them. This just sucks! Well i will update when i have more info to update on. I think her GI will be coming in soon.