Hello all. Well our appt was okay i guess. I mean we got good news about heart functions. But we were told we are having surgery anywhere from 2wks to 2mths. It is a wait and see thing. At the first sign of heart failure they will do her surgery then. But if not then they will wait till she is 8wks old. Now we have to gain some weight to do the surgery. Also they are going to close both the holes in her heart. She will need two heart surgeries. One now and then one when she is 1yro. He is concerned about her slow growth. He is not sure if it is the heart causing this, prematurity, or something else. They are going to be running some blood work on her to find out if anything else is the cause. He took her off one of her heart meds and started another and they are going to keep a close eye on her and make sure that she is not going into failure or anything with the adjustments. We were also informed that we will be in the hospital until we have significant growth, weight gain, and we have our surgery. So we have a LONG journey in the hospital. :( He is being nice and keeping us at the hospital where we like. It is close to dh's work, my house, and just conveinent. So that is our update on that matter. Btw she just vomitted so the nurse is cleaning her up. We were doing so good today too. UGH!
I got to see the girls today. No fevers so i had dh bring them up to see me. They were not allowed to get close to the baby but they got to see her and watch the nurses take her temps and give meds. Genesis thought that was so cool. Alexus told the nurse NO NO NO HURT! Then we took the girls down to the playroom here and then watched a video. Then i took them back to my grandma's. Genesis asked me why we can't sleep at our house with baby kenadie. I tried to explain.. She was like momma i love you and i miss you. God my heart breaks. I just dont know i can do this for 2mths. Alexus told me "BYE MOMMA! HAVE FUN!" As long as she has toys and her granddad she is all good.
The financial councelor came in today.. I am hoping we can get a bit of help with all this stuff going on. They are going to help me fill out the forms.
That is about the update for now. They are going to reaccess her bronchitis tomorrow and then decide if she needs antibiotics and an IV.
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