So today we got mixed news. Kenadie got put on some more meds. Reglan to help with digestion as we vomitted our continous feeds last night a few times. Then she is on some other med to help her tummy. Then her heart meds are staying the same. Her jaundice is down 1 more point. So we are going in the right direction we just have a ways to go with that. Then we got the news today that we are probably going to have to have heart surgery for sure. Her echo was a bit changed from friday. More pressure on the right side of the heart. However the meds are doing their job and not letting it enlarge or anything. So we have to gain weight, keep it on, get rid of the jaundice, and THEN they will tell us when we will have heart surgery. I was a bit bummed to hear about this but i know it is what ever is best for her and that is what we will do. I miss holding her and nursing her and being able to have those bonding moments. I hate having to just shove a binky in her mouth when she gets upset.
We need prayers for my other two girls as they are sick. They have high fevers, chest congestion, and just plain dont feel good. They have a virus per their pedi. Which is NOT good at all for Kenadie so they are having to stay away and i am not allowed to be around them since I am the primary one that is taking care of her. So we need some healing vibes for them so they can come see their sister and i can see them.
I also want to let you people know that i appreciate all the support and prayers, the emails, and everything. I have a great cousin who keeps pouring out her suport even though she is like 1wk post partum herself (yes she had her baby.. about a wk ago.. 10lbs 4oz 23inches long) then my grandparents i swear are angels themselves. they have offered to take care of my girls for us. part of this does not surprise me as they have taken care of them since they were tiny babies themselves when i had to go to work. I will check with my cousin to get her permission to share a pic of kenadie and her cousin together. They are so cute! Double K! (his name starts with a K) Well that is our update for today. I will try and hop on this weak internet connection when i can and update. THANK YOU SO MUCH!
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5 comments:
You guys are in my thoughts and prayers! {{{HUGS}}}
Sounds like a step in the right direction. Our prayers are with you always! Feel free to share the picture -- let me know if you need me to send a copy to you. The two "K's" do look so cute in that bassinet together! :-)
glad to hear at least her bili is coming down a bit. hopefully the reglan and other med will help her little tummy. poor little babe. hang in there, mama. praying for your other little ones too...
Continued prayers and hugs for Kenadie, you and the girls!
sending lots of positive thoughts your way. I am so sorry that you are going through all this. I hope your girls feel better. You must need a big hug ((hug)))
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