hello all. sorry i have been the world's worst blogger. but here coming up soon you are going to be like does she ever shut up! lol. if we get put in wisconsin.. then my computer and school work will consume me! :)
So.. what to say first. K is stable. Weight not gaining but maintaining. We need her to gain just a smidge more so we can lose some of it when we do our feeding therapy session. We have not been offically accepted anywhere yet. Everyone keeps saying oh she is too young. But we keep facing roadblocks. She is having a ton of problems with her motility now. (not pooping) Then her fluid just pours out of her stomach. So now the pedi is talking about putting a GJ tube in (more invasive). I really dont want to go this route. I want her to be able to stay with the G if we have to have one at all. Her pedi did tell us to start coming to the realization that she may have to have one for the rest of her life. You know right now.. if that is all she has to deal with. Bring it on! I know it is not ideal but you know what none of this situation is ideal. And if a man can not love her with her tube.. then crap on them. She is a very beautiful baby. :)
We are also trying to get in to see peds cardi. All her cardi's keep going on vacay and stuff. So that makes it a lil difficult.
I just got a call from wisconsin while i was typing this. They are sending our info packet in the mail so we can fill it out and get our date to come! Crossing my fingers!
2 comments:
Hugs! Many many prayers that WI comes through!
I must have missed something about WI. I'll have to go back and look. But the university medical system is wonderful. And I have excellent relatives working in the hospitals there. Hope that everything works out and she doesn't need the G.
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