Today I look at Valentines day at more than just a day for love. My child has had her beating heart in the dr's gloved hands twice now. We pray no more. However it means awareness to me. So many families have to go through the struggles of having a heart child. Its not easy! But they are awesome fighters.
So since I last posted kenadie did end up with the URI (upper resp infection) but she beat it better than any of us. Thanks to her liquid gold that she gets infused. lol. Kenadie also has gained all her weight back from being sick. Then we went out of town. Not for medical. We came back and crap very very ill. She is still fighting it a week and a half later. She gets infused tomorrow.
We got her bloodwork results a couple weeks ago. Those were not too helpful. Her cd 4:8 ratio is horrid! the dr said not just crappy but horrific. He is so perplexed as to what is going on. So we go see them Feb 21. They are testing for rarer forms of immuno issues.
Genesis is doing great. She scored 5 buckets this past saturday. Alexus just had her ADD meds changed and is doing so much better! Its amazing what can happen when you have focus.
I on the other hand have had some issues with my health. They are doing some heart testing, brain testing to see what is going on. I am pretty nervous as i am THE caretaker! ugh. What am i going to do. I have a small family network. I love them to pieces but I don't like putting weight on them. Just scared.
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Thinking of you and sending positive thoughts always. I wish I could do more.
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