It's certainly a Monday!

Well it's certainly a Monday! Our day started off with a lovely page on my pager at 0700. For those that do not know I am a cancer research nurse. Long explanation to it. I am specifically over breast cancer. Then the little diva needed a scan on her tummy today. They were looking at the gallbladder, liver, spleen, kidneys, and bladder. I for one get paranoid when they spend way too much time on one certain organ. From previous experience that is NOT good. So now we sit and wait. Her blood work came back and still have a craptastic level on her D counts. From there the kids got to go to work with momma for all over 30 mins. Kenadie assures me she wants to a nurse doctor. lol. Alexus said my job is gross and she wants to be a teacher. Well hmmph. From there it was one mini crisis after another with my patients. I give them my heart. I am a very passionate nurse. After work I picked up the lil ones. Then got greeted with the news that a dear friend of the family her dad has passed unexpectedly. 2013 has not been the year for us thus far. It is scaring the crapola out of me. So far just this year: my husband's brother, grandpa's brother, and now our friend's dad. Just not ok. Please keep them in your prayers. They are going to need it as her mother is fighting met breast cancer. So my emotional part of the day is I occasionally catch myself thinking I am not enough. Like today I took kenadie to the hospital for her scan and then felt like my patients were shorted bc I couldn't be there. I am the only one right now that could take her due to ailments going on. It's just my mom and I that take her to appts. Her dad does not feel ok to do such things and as the years have went by it's ok. I am fine with it. But bc I try and tackle the world I end up feeling like I am not enough. Like someone is getting shorted somewhere. Sigh. I am hoping it is just a monday. I will take a nap and hopefully wake up refreshed. Btw the results should be in by Friday. Well off to get school clothes ready then to snuggle warmly in bed.

New year with new goals and lots to talk about!

Hello. I am going to forewarn that I have lots to chat about. First off happy new year to everyone! It's a new year, so i look at that as a new beginning. Looking back at 2012 it was one heck of a heck. Russ moved in, we got married, kenadie had major surgery, she got approved for MAKE A WISH,and his brother passed. So going with the new year thing. I have some goals. I need to blog more just for more sanity to get it out. I am going to start kenadie a caringbridge page up. So those who just want to follow updates on her can. Plus MAKE A WISH recommends it as they like to stay in contact with their kids. Which is fine. Another one of my goals is to coupon more this year. Use wal-mart less. I don't like how they treat their employees for the most part. Not saying I won't shop there but I hear all too often how they are mistreated. Another goal of mine is to get healthier. Not just weight wise. But I have some medical issues of my own that are concerning and need to get them inline. I would love to come off some medication. I want to be a healthy momma for my kids. Then my last goal is I want to work on getting Campaign Kenadie more off the ground and going. I would like to help not only kenadie but other RARE children out there. So..Kenadie got approved for MAKE A WISH. For those that don't know what that is please check out makeawish.org it will. It is for children with life threatening illnesses. Kenadie has the odds very well stacked against her. She had her major surgery in Novemeber and we have seen quite the increase in autonomic disruption with her system. Where she just plays and her hr goes to 200bpm. That's not supposed to happen. She had to sit down in the grocery store today bc her heart was in her words "being a pain in the head". cuBut anyways. Kenadie's wish with her coordinators is to meet Cinderella. She can't wait. I would like to get her the stuff to do her room in cinderella theme when we can get the funds. So we have a few more steps to complete with MAW and then they will tell us our date. My feelings on this. In one way i am so flipping thankful and grateful and all those things. In another I sit down and go Lord why kenadie. Bc you know you have to meet their guidelines to be able to go. When people find out we are going they say a multitude of things: "oh lucky you, you get a free disney trip!" " how did you score that" and the list goes on. Let me say this. I would LOVE to have a healthy daughter and never go to disney in my life if that means she is healthy. But that's not the case and these people are helping her wish come true. Another thing. Kenadie would love to meet justin beiber. She can't go to a concert due to the noise volume. it would throw her in the hospital. But she loves his music. I have a video of her singing to his music. So in novemeber kenadie had a raux and y done with her intestines with a jujenostomy pouch. She has had a very rocky road recovering from this surgery. Our numbers keep bouncing. We have no clue. Kenadie's liver looked a little hazy prior to surgery also. thankfully those numbers are not all that wacky. her vitamin d is almost depleted. calcium is low and a few others. She still remains on IGG every 3 weeks via her port. if you ever have a question regarding kenadie please send me an email at hancock_alisha@hotmail.com subject title KENADIE. Tomorrow kenadie gets her liver, gallbladder, and kidney's scanned. She passed a kidney stone in october. So we have to follow up on those things. Genesis is doing well in school. Growing like all get out. She is still adjusting to the divorce and our unusal arrangements we have with that. Alexus is still my sprited child. Loves most things as long as they are kind to her. We are fighting the battle at school to get her help with learning disorder. That has been one heck of a rollercoaster. Well off to bed i go. Hope everyone has a blessed week.