Hello all. The diva is snuggle in her bed fast asleep right now. She's had a rough go the past couple days. Yesterday she decided vomitting was her cup of tea. Mind you she has had the surgery where that is NOT supposed to happen. So yes it freaked me out. It was while she was sleep and i heard her gasp and then bam.. ACK! I called the nurse who was no where to be fing found! ugh. I got her supervisor and got things taken care of. Then radiology calls and says can't do your scan tomorrow due to the camera broke. Well sh*t! Then she would not eat and then had a blow out. It was NOT our day at all. So today i took her to the GI nurse after she would not eat her breakfast. She says it anatomical that is what's wrong with her stoma.. which we figured out that. Did not take a rocket scientist. Then the hossy called us and says hey can you come in now. So we did. (We are at baylor her testing is at childrens of dallas) We get there and they tell us they are behind by 45 MINS! ACK! I had nothing to eat by then it was 230pm.. so i ran downstairs to get something to eat. Brought her back. She burped and choked. IT was nice. not. Then we waited and waited. Come 320pm i was getting ansy. So finally they let k eat at 335pm and starts her test. They were really nice and kept k entertained. The tech blew bubbles and played with her. After the test was over she asked me if i wanted a peak.. Sure! It did not look good. :( 37.3% when we should have 55-60% and i have been telling this for MONTHS! Iwanted to shout i told you fing so! We will speak to the doctor tomorrow or in the near future and then go from there. The nurse told me the likely hood that k will have her tube long term. And i am more at peace with it. It is who she is right now and as long as i have my child i dont care! If people have a problem with it. .Shut your damn eyes! :)
Today i got my feathers rowled up. I was told to not be upset by any of it and this is because i SINNED! Lord Jesus please tell me i misinterpreted her comment bc if not... i know what she is eating for lunch next time. A bible sandwhich. I swear we are idiot magnets.
As of right now.. I think i need to withdraw myself from the other parents at the place.. for a day or so.. or just walk away from the idiots. I thought i was going to go ape nuts. But i surprisingly kept my mouth shut. lol. Another complaint i have.. is why the heck can the nurses NOT KNOCK? I mean seriously this is like my home. Not that i am doing anything that i should not. But man when you are changing jammies.. or whatever. please. and no we dont have a bathroom in our room. We have a communal bathroom. Any suggestions this momma will take them.
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"It is who she is right now and as long as i have my child i dont care! If people have a problem with it. .Shut your damn eyes! :)"
Agreed! Sorry that you seem to be an idiot magnet. I LOL'd at the "bible sandwich".
When Aliah was in ICU I remember having absolutely no privacy... but it was only for 10 days. I guess I just got used to pumping and sleeping and changing my shirts in front of complete strangers. Communal bathrooms really stink. Maybe you do need to back away from the other parents and stuff. Sometimes its just really hard to talk to people.
Hang in there girl! I hope Kenadie keeps everything down this weekend.
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