hello an update and possible surgery

Hello all. So here goes an update folks.. Prepare for the long ones now! lol. Ms K has been quite the diva lately. Since we have been here she has managed to learn how to reflux and asperate again. Destat once. And not want to take her food. She lost 7oz in a weeks time. So they bumped her cals back up on friday to 27 and we have not been there is a while. Since then.. she has gained 5 oz back!
Friday we went to the GI docs across town.. and man dallas traffic is no fun at all! The doc he is a bit unusal. He seen kenadie and was like this is not a simple task like he was told on the phone by case management. He also said he wants to make sure the heart is okay.. cause that can cause reflux. And lord knows we do not put heart and kenadie in the same damn sentence! lol So we have to do 3 studies on her tummy and an echo. Then he is going to do surgery on her stomach. Some of those are thursday at 9am. Then we see the gastrostomy nurse that afternoon at 1pm. She has to look k's g tube over and we are going to decide what to do with it until they relocate it.
We have been told we may be here for 3 to 4 more weeks. It is very hard being away from my family. They have come down on the weekends but still it is hard. I do not have a job anymore now. So I keep praying that all will work out some how some way but right now my daughter needs me and my attention. For those wondering from my house to baylor it is about 4hrs without heavy traffic.
For those who have asked how you can help.. i have to provide breakfast and lunch for myself here. So gc's. Please know this is only for those who ask me. I am not asking. And i love starbucks! It keeps me sane on those rough days.
If you have any questions on kenadie or anything.. please ask away! I will be glad to answer them!
btw i did not realize this was posted on an edited post.. i posted it yesterday.. 7/20/09