Okay. As i was saying. With the conflict that has been going on. It has severly congested the communication highways with our pedi. What am i supposed to do about it? Any advice beyond wanting to punch the nurse? I know it is cold, flu, piggy flu, and croup season.. but she is the one that decided to manage k's care. She told her GI that she wanted to do it all. Okay so i believe it is going to take some work. she is a DIVA here. lol.
J-tube news: So we got our j tube in last monday. Overall it was horrific. They did not sedate my child like they said they would if it took longer than 20mins. She has a malformation in her bowels that creates some very skinny passages. So the radiologist was having a really hard time. Frustrating! I ask multiple times and they finally called the doctor and her doc was on the wards so the one in clinic would not authorize for it. It was major bullshit! 1hr and 20 mins later they got it in. I was so furious! She is tolerating her J feeds so well. Little to no leaking out of her stoma. And you can tell the girl has packed on some weight. She most definitely has her momma's thighs!
So on the homehealth front. Well that is an act of congress. Anyone willing to sign my petition i would appreciate! lol. We FINALLY got our letter on friday! So now we have to wait for OHA to come out and verify if in fact kenadie lives here and she needs the help. Like i would be asking for any other reason.
We are getting ready for Kenadie's big birthday bash. If anyone wants any information please email me about it. hancock_alisha@hotmail.com. We have had a few people ask about sending her items. WE dont mind at all. If you will email me i will give you her mailing address. Handmade birthday cards are cool too. If you will put your state on it. We would love it that way we can show here just where she is being supported from and all of the states!
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