we have a date for ohio!

Hello all.. Please forgive my abscence. Trust me I have been so busy. Hmm where to start.. The diva showed her true colors a couple weeks ago. With a lovely hr of 42bpm while she was awke. So that bought her a trip to the cardiologist. He put an ekg monitor on her and it will stay for 30 days. What a pain I might add. But it will determine if it is all autonomic or if she has av disease. She also went to the ent doc and he said he wants to scope her throat to make sure her vocal cords are fine bc of the swallowing issues she is having. That is scheduled for january 16. Then we finally got a date for Ohio. Febuary 16-18. But that is subject to change. I want to be able to go when my fil can go. He is my rock support when we are out traveling. So we are going to see if they have another date when he is off work.
Right now.. she is having some issues. I think it is just too much for her. All the family visits, the shopping, just a bit of everything. I do forget that she gets hyperstimulated. But it is hard to just leave her at home with the nurse or a parent. And right now. Lord dont get me on our nursing. That could be a LONG ordeal! lol. I think with her going with me and stuff it keeps some normalcy I guess. But it is going to have to change. She is just not dealing with it. Not sleeping well. Crying alot. ugh.
Personally, it has been a bit tough lately. I am having my surgery on monday and wondering how the hell I am going to juggle it all. I am sure in the end. Everyone will be breathing and living. But I just dont know. Then I get the kind reminders everyday that my child is not "a well child". Wether it is her temp, her issues with hyperstim, purpling which i might add is a little funny when you are out and a stranger freaks lol, just those little things. I dont feel like I connect much anymore with those who I used to be able to connect with. I get easily irritated with people on small things now esp when it comes to their children. Like hello dont treat child x like that. You have a healthy happy child. Cherish that.. enjoy that! And sometimes.. I have this overwhelming feeling to want to go slap person x.. but that might not look good on me when i become a nurse. ;)