Hello there. Sorry for the lack of updates.

Good news first! MS K ROLLED OVER FOR THE FIRST TIME! YAY!

Sorry for the lack of updates. My laptop is mia due to being broken. Sucks but oh well. Ms K is haning in there. She had an episode and i caught it all on my digital camera so i could show the doc. He was like HOLY COW! Yep see i am not lying buddy. So they have finally agreed to do the MRI here where we are at. Then if indeed it shows a brain avm then she will have to be transferred to dallas because her cardi thorasix surgeon is there.
Please pray for her issues to be shown tomorrow during the tests so we can get them fixed quicker. If dallas wont take us i think i am going to call memphis. A couple of the ladies in our group their children have been treated by this doc and they are doing wonderfully.
I have to say thank you so much to brenda, jill, and kim. Brenda thank you so much for keeping us company the other day! We appreciate it! You were also there to see ms K roll over for the first time! Jill and Kim i can't say thank you enough. You ladies are heart mommas and know this roll. And right now this roll SUCKS! I am so close to pulling my hair out and you three ladies have kept me sane!
From my bed breaking in half last night to the cafeteria refusing to send my order up.. I am done! I hate being here. Only the cuban makes me happy. ;) lol. ( I will elaborate more later on that!)
I will try and post more tonight. My husband is here and my computer time is up. :(

a mini update w/ ramblings

good morning. forgive my typos I am emailing on my phone.:) ms k is being such a fighter. when she is awake which is not often she just smiles and coos. god knows that is what keeps me sane. we are waiting on the docs to figure out where they want her to go. if dallas won't take her then we might be going to houston or alabama. both of which are so far away from home. as long as she gets the care she needs I don't care I will travel anywhere. my kids are my life. my biggest fear is something happening to my baby.
I am trying to keep faith in the docs that they have her best interest at hand but it is hard when they almost killed her. oh and the next nurse or person that says I bet ur tired of hosps or ur pretty emotional I am going to smack!
I was thinking of getting kenadie a journal so I could write letters to her and how I feel.hmm I wonder if I can get someone to bring me one up. lord knows I won't leave ms k.

a mini update

k is doing okay. we r still waiting on a bed in dallas. she is having some breathing probs. they can feel her liver again. :( she has an AVM (artery and vess meshed together) you can also hear a pulse in the brain. not good either. I need prayers that god will bless the doc with all the answers we need. well I will try and post some after I get a nap. I am so emotionally exhausted and physically.

PLEASE PRAY! K is in the hossy

I almost lost my baby yesterday. She stopped breathing a couple secs while at the pedi's office. We dont know why other than her heart failure. We are at a local hospital and are waiting on a bed in dallas. This all just sucks and has been a horrible nightmare. I will post details when i have a chance!

I love this video!

http://www.youtube.com/watch?v=Pihnu3Qlx30

God must really love me!

Just not in a good mood.

I am just not in a good mood right now. Today is K's appt and she was having some problems this morning. Gagging and wretching all the way to my grandmas. Swelling in the eyes. I swear one of them swells and looks like she has been punched. Her breathing is a bit more rapid. I just feel beat down today. :*( Watching her struggle is so hard. Well i will write more in a bit.

Hello! (with an afternoon edit)

Hello. I finally decided to come on and do an update. Sorry it has been so long. But as you know that my life is nuts! K is doing okay. She had some edema going on last night. I decided to give her lasix a bit earlier and right away she was doing so much better. I wish she would not do that to her mommy. I can't take it! We still have not heard word on dallas and frankly i am going to be crawling up their caboose if i dont get an answer SOON! Ms K looks like she has lost some weight this morning. My gut feeling is that she has. So i am going to have her nurse tell me exactly how to fortify her formula again just so i can tell doc J that i am doing it right and have had the nurse double check my work. kwim.
Lately i am just an emotional ball. One minute i am great the next not so much. I hate when people ask me stupid questions about her condition. It makes it that much harder to deal with. kwim.
I am working on Campaign Kenadie though. My dh and I are working on raising money for pediatric heart disease awareness and research. We are also striving to add one meal card and a fleece blanket in the bag that you get at Dallas Cho from a local organization. The last thing a parent should have to worry about on surgery day is if they personally are going to eat. That kid needs a strong mom and dad! Also the blankets that you get in cv-icu are so thin. I know i love having a blanket to cuddle up with. So that is something we are working towards. If anyone wants info and wants to help raise funds for us. Just email me at campaignkenadie@hotmail.com
i will post an update after i talk with her pedi!

so my afternoon edit is that when i went to pick up ms k today she was a happy lil camper and then had a big sweating spell. clothes are damp and all. ugh. :( i am so DONE.. DONE DONE DONE! tomorrow is our appt i am going to lay my feelings on the line. i know kids have far worse things going on.. but man this crap scares the bejezzus out of me!