Hello! (with an afternoon edit)

Hello. I finally decided to come on and do an update. Sorry it has been so long. But as you know that my life is nuts! K is doing okay. She had some edema going on last night. I decided to give her lasix a bit earlier and right away she was doing so much better. I wish she would not do that to her mommy. I can't take it! We still have not heard word on dallas and frankly i am going to be crawling up their caboose if i dont get an answer SOON! Ms K looks like she has lost some weight this morning. My gut feeling is that she has. So i am going to have her nurse tell me exactly how to fortify her formula again just so i can tell doc J that i am doing it right and have had the nurse double check my work. kwim.
Lately i am just an emotional ball. One minute i am great the next not so much. I hate when people ask me stupid questions about her condition. It makes it that much harder to deal with. kwim.
I am working on Campaign Kenadie though. My dh and I are working on raising money for pediatric heart disease awareness and research. We are also striving to add one meal card and a fleece blanket in the bag that you get at Dallas Cho from a local organization. The last thing a parent should have to worry about on surgery day is if they personally are going to eat. That kid needs a strong mom and dad! Also the blankets that you get in cv-icu are so thin. I know i love having a blanket to cuddle up with. So that is something we are working towards. If anyone wants info and wants to help raise funds for us. Just email me at campaignkenadie@hotmail.com
i will post an update after i talk with her pedi!

so my afternoon edit is that when i went to pick up ms k today she was a happy lil camper and then had a big sweating spell. clothes are damp and all. ugh. :( i am so DONE.. DONE DONE DONE! tomorrow is our appt i am going to lay my feelings on the line. i know kids have far worse things going on.. but man this crap scares the bejezzus out of me!