A good laugh and a good cry

So this morning i shall start with a good laugh. Sometimes i think God has a way of cheering us up. Yesterday after work i went to go pick up my girls from my gma's house. I see 1 huge box, 1 medium box, and 1 small box from our home supplies company. I am like okay small box is formula. Medium box is bags for machine. Wth could be in the huge box. So i see medical straws on the outside. Hmm okay they did this before to disguise her syringes and what not. So i open it up.. people.. i died laughing. It is 15000 INDIVDUALLY WRAPPED STRAWS! On the front of the box it has kenadie's tag and everything. So my gpa and I got a huge kick out of it. We were like man kenadie is going to be drinking ALOT if she needs straws already. And this is for one month supply! lol. Ah it provided good laughter. They sent us a nursing home shipment and the nursing home got our shipment. what they are going to do with baby g-tubes, syringes, and more formula.. hmm i'll never know. Maybe they were trying to make them feel young. ;) lol.
So yesterday.... I called my pedi in the AM because i wanted to convey the info about TN. I had also recieved a call from Cleveland Clinic saying that she has been approved to come to their clinic. However we would love TN first. So my pedi called me right back. That NEVER happens and it is not good obviously if she does. Esp when you have results pending. lol. So she says Alisha this Donna.. Umm hun i need to talk to you about K's bladder and Kidney scan. Okay.. Then i knew it was not going to be fine. She says something is not right with her bladder and kidneys. The bladder is dilated and so is the kidneys. Now this would not concern me but with everything else she has going on it does. And her pedi said hun i dont know how many more times i am going to have to deliver bad news. She told us she loves kenadie like her own daughter and it is getting harder each time. So then she got down to the meat and potatoes of it and just told us that her bladder and kidneys aren't working they are supposed to. :*( DAMN DAMN DAMN! I just fell silent and she asked if i was okay. NO I AM NOT OKAY. I AM TIRED OF THE SETBACKS! But i calmly said okay umhuh. She said they need to sedate K and do a dye test in her bladder and kidneys and check the quality of blood flow and what not. Then she will have another procedure to fix what is going on with her little body.