So the title really explains it all. We went to a local hospital one that i love and is a 2nd home almost. They got us in fast due to her not needing to be around germs. The doc came in and says wow that hb is fast. Hmm yep. Oh btw her temp went back down but we still had a pulse of 196 while sleeping. So not good. Anywho. She does not have traces pneumonia at this time. And umm she does have an infection so we have to keep an eagle eye on that.
So yesterday we go to our pedi.. the pedi calls our surgeon for the gtube and what do you know. He says he has to take it out and redo it. Well this sounds easy right?! Wrong! When you have a heart child. NOTHING is easy! They have to take extra precaution especially when it comes to the diva. So she has three more scripts that she has to take. She is getting a bigger gtube also to help with some of the drainage stuff.
Okay here is my rant... Yesterday I am at the mall.. We were walking.. Kenadie was fussing and so i decided to let her comfort nurse. Although she does not get a whole lot of her calories this way we still try often. But trust me i was not in anyway exposing myself. I have the watch dog aaron. lol. So we are over by the little toy machine things and some employees from chickfila were making fun of me and making comments. Finally i was like how immature are you for snickering and staring and making fun of a mother. I am just damn happy i can try. I did tell them if my nursing bothered them thenthey needed to put a blanket over their heads. (thanks ivillage!)
So my other rant and loads of rambling because i need to get it off my chest.. hmm lets say person X (for confidentiality reasons, due to family members reading this) calls me and says i am so irritated. I have two children one that is healthy as a horse and another one who is sick all the time. I am like oh yeah.. She says I hate that she has sniffles and sneezes. HUH?! Okay please I know that having a sick child is hard.. Do i know that. But please dont call me and complain about your child. I was like yeah Kenadie is sick too and it sucks. She was like oh you dont understand. Okay.. sure. Then person X was like alisha..remember you wanted Kenadie and you signed up for this. Hmm so what did i want to tell her.. Hefer I did not call you.. You called me. I was not complaining. You were. But what did i say. NADA! Then the unmentionable question was asked yet fing again! Do you think that your meds caused this?! Okay.. I am going to get a recording so when some dumbass says something I can press the response i have prerecorded. Also please dont ask me for an update if you dont want to hear the good and the bad. Kenadie has days where she does great! Where i can say oh she held her bottle. But we have many setbacks. so when i have to convey those.. Dont yell at me about them. I cant help it! Being a heart mom is not an easy job! If your not with me and support me in a positive manner go the heck away! Example.. family member E gets mad because i forget to give updates then yells at me. How i am not keeping them in the loop and how i am not being a good _______. Ask any heart mom out there you have too much on your plate to make sure every tom pick and harry and informed. If you know i speak to a certain relative ALL the time.. heck call them and make my life a bit more easier. Also dont tell me i am TOO EMOTIONAL. You try going through what my husband and I am going through and then let me know that i am too emotional.
Okay.. I am done griping right now!
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Alisha, I hate that people actually have the nerve to ask you if you think meds caused K's heart problems. That is the rudest sh*t and it shows that those people are... well maybe I should stop there.
I just wanted you to know that I keep following your blog and I keep diva K in my prayers.
Hugs to you, Heather and Maya from the sf group.
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