Happy Mother's Day and an update

Good evening. I hope everyone has a blessed evening. Today was a good day. For mother's day my husband took me on a nice quite romantic dinner that had a lakeside veiw, he scheduled the babysitter for all three, and everything! We did that last night. Then this morning he brought me a carmel frap in. Oh sweet heavens! Also one rose for every child. 5 Roses. Genesis, Alexus, Angel Robert, Angel Maddy, and Diva (aka Kenadie). I thought that was so so sweet. I went to weight watchers today too.. well lets just say DO NOT weigh after you been out to eat on a date night. But to my defense i stayed within my points. :) Anywho.. I am down 6.6lbs in 3weeks. Slow but steady and that is the best kind. Then we went and visited my mom who is still in alot of pain and got an update on my dad. He is STILL in the ICU right now. He crashed last night again on them. So no reg floor for a bit. This really does suck bad. So that was my mothers day. Oh yeah.. Diva decided for mothers day that she would give me 4 POOP EXPLOSIONS! She usually has problems just getting one bowel movement every 3 or so days but i think the bowels emptied out and just so happens it was mothers day. We went through 5 pairs of clothes! LOL!

So sorry for the lack of updates. Life has been crazy still. So we have just been on germ mode really with the diva. When we know she has a procedure coming i am even more on overkill with germs. I am too scared for her to get sick and stuff especially post op. BTDT post heart surgery that was a nightmare in itself. So i talked to the case manager this week and we are still on. We have to get some pre-op stuff done this week. We are so not used to doing all that crap outpt. I dont understand why they just can't do it when we get put in house but of course nothing is that dang easy especially at children's. Did I mention I hate it there?! Anywho. She also has to have an echo done this week. Unfortunately Diva's nurse heard a murmur this week. I about crapped my pants when she called me. Saying the m word in my house equates to the f word in other peoples houses. I am PETRIFIED of the M word. So we had our appt with the pedi on thursday and weight wise eh we are almost 16lbs now! Go chunkers go! She has two teeth that were teasing the pedi. Pedi said they would be in soon. Btw she got one last night/this morning. Happy moms day to me! lol. Anywho. The pedi and i both said echo at the same time. It was really funny. But we agreed we needed to see how that mitro valve is doing. It is the one that likes to regurgitate its food (blood). So needless to say i am very very very nervous about going for her echo. I know it can be the same or be worse. Now if it does have change we are NOT going forth with the tummy surgery. She will be on the FIRST trip to dallas. Kenadie has had her chances at a fair game and we all know how she likes to play her deck of cards so her pedi says one move and down I35 she goes! lol. She is still having purpling episodes also. Again makes me very nervous. But I have come to have a bit of peice about it. Other people not so much. lol. She is also going to have her bladder and kidney scan done while she is there at the hospital. She is having some reflux with them and we need to make sure that she does not need surgery on that also. If so they will do it while she is there.
I personally am not ready for her surgery. I hate having her sedated. With heart kids it is always a bit show when they have to go under sedation. But I know what I am doing for her is the best. Another thing that is bothering me lately is people asking about kenadie's developement. I try and beat around the question but does it really matter if she is doing "tricks"? No she can't hold her bottle consistently, grasp, or roll, but as my cousin pointed out she is kenadie and she is who she is and we will love her for that. She is a happy baby that loves to smile and just light up everyone's day. Trust me if you have met her in person you know what I mean.
I also have not learned on how to not answer a few phone calls. It would help if they called from the same number. lol. But I recieved a call and I dont know if this person does it intentionally but when they call it is so insensitive it is beyond belief. I am almost in tears when this person talks to me. Yeah i try and hang up but I also want to keep calm waters in my family. kwim.
Lately i have had more night mares too. I dont know if it is a mixture of the surgery coming up and the recent phone call. But last night I woke up crying and put my hand on her chest to make sure she was breathing and okay. It did not help that she had a severe sweating episode thursday night either. Well that is about it. I will update after her home health nurse comes out tomorrow. She has one serious granuloma on her gtube. I am very concerned about it and infection.