Yep just what the title read. However the North part is.. We are hoping Kenadie's friend Maryn can get well enough we can come visit her! She lives in Nebraska! Please pray for her! We want to come up! :)
Okay.. on to business. So first off.. the older siblings. Genesis is having some jealousy issues. She rarely has shown any but now she is and BAD! She is making up for the few years she did not! lol. So daddy and I took her to get her hair done, shopping, and let her pick her resteraunt. We are going to try and do their day once a month with just mommy and daddy time. She said i had so much fun. Just depends on how the funds are looking. :) We are also going to have her councelor start helping in that area too.
Ms alexus is on her second set of castings. Btw for those that wonder what they are for. It is to slowly stretch the muscle. Her heel cords (muscle in the heel) are so tight she has no range of motion and they are stiff.. Think a really stiff neck! OUCH! So we are hoping this solves part of the problem. She will wear splints for a couple years after this. We are hoping to avoid the knife. She also has an mri and cat scan coming of the brain, neck, and spine to try and determine her muscle issues out. We pray with an answer that we can handle! Her sensory issues are touchy. One day we have a good one the next well you just pray the next day is better. Again our councelor is working with her therapist to see if we can get this to help her more. We have seen a slight improvement. As for the asthma holy crapshoots! It is killin us! She is having her breathing tx about every 4hrs or so. Pulmicort and xopenex. They are adding an allergy med this week to see if it will help!
Now for Kenadie.... where to start on my lovely. Since my last brief post the lady bug has gotten gastroenteritis yet again. Still has some left over because her body prossess things very slowly! Everytime she eats she poops much like a newborn. We also have some malabsorption going on so that is not making things pretty either. Although let me tell you the best butt paste stuff.. It is called the poop goo. Its a combo of meds mixed and its AWESOME! Thanks to dr b for that one! Speaking of our pediatrician that we have now is amazing! We absolutely love him. Now he is very forward and tells you how the cow NEEDS to eat the cabbage but he is awesome to his pt's. He called the other night just to tell me he was thinking of kenadie and needed an update on her gastro stuff. Just the compassion is awesome. He reminds me everytime we see him that she is "NORMAL" in his office! It feels so nice not to feel like a burden when i call with questions! He takes them seriously too! So yeah. He was trying to get our muscle biopsy done while we were in the big d. I had my hopes up wich was my first huge mistake. He called today and left a message that ohio said she HAS to see their genetic endocrine doc then have the biopsy done there bc they have a special protocol they have to go by. Only center in the u.s. that is doing this. Well STINKY POO! If i may be honest i was upset! I figured she was going to be out might as well get it all done so i dont have to watch her suffer again and again. The test we are about to endure is cruel to me. She has to lay down for 8hrs straight! yes straight! umm i think they lost their minds! No sedatives bc it can affect the test. But we are asking about other options. We have done this one before and it wasn't pretty!
Btw i have finals next week.. An extra prayer would be nice for me. I have got to pass my anp class. The rest i am doing okay in.
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I'm so glad you guys got to do some Big Sister time. It's hard with younger ones being ill. I know I feel like Jaime gets neglected by us too. I hate it, but what's a mom in our situation to do. So way to go Mom!
Fingers crossed that the casts work! If not, we know an excellent ortho surgeon here. :)
Keep me posted on Dallas/Ohio.
And yes, M is GOING To get better so you guys can visit! I declare it, so there!
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