Tuesday, May 25, 2010

I can't sleep!

so lovely lady decided to throw some irregular beats tonight. Her nurse is finally here but i still can't sleep. So i thought i would share this link about mitocondrial disorder which is what they are suspecting she has. Blood work is lining up with it. http://my.clevelandclinic.org/disorders/mitochondrial_disease/hic_mitochondrial_disease.aspx
Okay so we talked to cardiology this morning 2x's. First time i was told maybe your tired and over thinking it and she wont die so she is good. The second time it was a total different story. He called and got her 30 day monitor from her okc tracing and it show quite a few bradys and tachys. So now we need to catch a good episode again bc the one transmission i sent did not go through. Then we will talk about it in clinic in july. They could possibly admit tomorrow depending what her pedi says.
i just dont know what to think. I broke down after talking to her cardi after the 2nd time. I dont know what to do or think or say. My heart feels broke for her. I am so scared something will happen to her. I am trying my best to make sure she stays healthy.

3 comments:

Tasha said...

:(, hon, you are doing EVERYTHING right. I understand the being scared part, but you are doing what you can. I hope things went smoother last night and K decided to take a Diva break.

tkishkape said...

My troubled Neice, you are already doing everything you can. The rest is up to God. Don't lose the Faith. Our prayers surround both you and K, lifting you up for the healing both of you need.

We love you.

Uncle Bert and Aunt susie

hancock_alisha said...

@ tasha: thanks so much for being there. I am sure u understand. I just hate the feeling when ur hands are tied. :(
@ uncle bert: thanks so much for the love and support.