Hello all. Unfortunately we are still in the hossy in dallas. Well good news is her heart is looking great and her fluid levels around it is great. She unfortunately is not gaining weight right now. But the doc said we would see weight loss before weight gain. Today she destated in her sleep which scared the bejezzus out of mom and i. Her doc thinks it is because of her reflux.So that leads us to why we are going to possibly have another surgery. They are wanting to do a neonissin on her to fix the reflux valave so she is not able to asperate in her sleep. We have been there a few times now and i certainly dont want to go back there again. They are going to mediflight us back to baptist and deal with the issues at hand there. The crappy part is we are looking at yet another month of being in the hospital. I seriously dont know how much more the hospital i can stand. I want my baby HOME AT MY HOUSE! This week will mark 2mths in the hospital.
We have many follow up visits on her heart here in dallas. But we are praying that all will continue to stay fine on that.
If we can get some more prayers it would be appreciated. Oh yeah her bp is still yo yoing right now.
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HUGS sweetie! Glad to hear her heart is doing better. Many many prayers that she continues to thrive and get stronger.
HUGS to you! Sending some P&PTs your way!
Tons of Hugs to you and Kenadie. I am so glad to hear that everything is progressing. And we will keep you and your family in our prayers.
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