Merry Christmas and ramblings..

Hello all. First off Merry Christmas. Ours was an okay christmas. Just thankful i have my baby and family.
I have to apologize first off for the lack of updates. But my body finally just gave out on me. I slept and just layed around for the longest time. Just laying by kenadie's bedside. So we have had a couple set backs. Her upper lobes of her lungs are puffy and hazy. So they are doing therapy to help her with that. Then she is having problems eating. Her O2 levels drop a bit when she eats and she chokes. So now they pushed back our going home time. They are going to do swallow studies to see if she has a swallow problem or just acid reflux. If it is just that then they are talking of still doing a neonis surgery on her so she can keep down her feeds and she wont asperate.
Her bp keeps doing this up down thing right now which is totally normal for a heart baby that has been on bp meds for a long time. It is like her body withdrawls from it.
So on a tentative going home date.. yeah that is still determined. When kenadie had her surgery the surgeon said about 5 days then she could go home. I told myself not to get my hopes up. But i did. So now i am a bit sad about that. Today marks 7 wks in the hospital. I am so ready to have my baby at home!
Oh yeah something great happened. We went and checked in the Ronald Mcdonald house and the house manager told me that she wanted to take me shopping. So after i got settled i went up there and she took me to this room. It was filled with toys.. Omg so many. So she gave me two trash bags and told me to fill them with toys for my girls. Such a blessing since i have not had time to go and get stuff for the girls other than the one gift that i had waiting for them where they were staying. So i can't wait to get home and have our christmas. Also my 4yro birthday is on the 29th.. so i can't wait for her to see what we have for her.
Well that is our update for today.