A long update. Sorry for the lack of.

Very crappy internet signal here. I have to cross my toes just to type this. lol. So we are going home probably today or tomorrow. I never thought i would find a worse hospital than the one i dislike in oklahoma. WRONG! Sad when the nurses admit it too. You tell the public you are at L in memphis and they are like omg i am so sorry. Wow. That makes me feel great. So from the start it has been crappy. We get here at 330 am after being on the road for 8hrs (could not fly as they were ginormous amounts of money, but am flying home.) No body knows who the hell we are even after telling me that the ER would. Trust me it was not because the ER was busy bc they had one back in the ER and that is it. The lady even said wow we are dead right now. Well they only have 12 beds to begin with. So yeah. Then they tell us to go burn time till 9am. Okay then say better watch your backs the crime rate here is worse than detroit. Holy lord what have i gotten myself into. So i am nuts and have not ate since 4pm so i am like lets go. We go to denny's and find out just what they are talking about. Oklahoma is so calm compared to some places. Then we get back at 6 am and the nurse bless her heart puts us back in the procedure room and let us sit back there. I call our nurse manager still nothing. So i finally get ahold of my pedi who calls Dr. K and we get the show on the road. Now the admit girl lord i would love to know how she got that college degree that was hanging on her window. She was slow and i dont mean pace either. We finally get up to our room at 10am and they tell me K has to be NPO. Okay fine. Then they echo tech comes in and does her scan he says well i heard you are in the OR in the morning. Umm DO WHAT? Then she has her ekg.. that was fine. Then they say after she has had nothing to eat or drink since 6am that oh yeah we can't get the tests done. So they ask me for the 5th time what she eats. I told them Alimentum. The nurse says oh i dont know where to get that at. WHAT?! She says oh she is going to have to wait. By that time i was ready to go home. People their attitudes and crap here was HORRID! Lets just say they were not happy we were here at all. Then finally around 7pm dr. K comes in and says get comfy let us figure out what is going on and i am too tired to do it right now. So after 40+ hrs of no sleep i was a bit dilusional. The nurse that night had to give me a play by play till i told her to HUSH! Dont wake me up to tell me she X amount of pee in her diaper. Then she was supposed to be npo at midnight. The chick does not turn her pump off till 4AM! There is no such thing as commuinication up here. It is horrible! So after all this is done and said. Ms K has a leaky valve in her heart. They are just watching that. Her patches look beautiful. Which is great. She has a vein malformation that does not connect to the heart which we found out why dr. K is not going to touch it. Then her bladder and kidneys are refluxing. So they are going to do a test on those when we get home. They are also going to do another test down her throat to figure out why she can not consume more than 2oz at a time. Personally i want nothing more to do with this hospital. Dr. K is a wonderful surgeon when you have that problem right there. He has touched so many lives. But as he told us. I am not confident i can do this so i am not. I will leave it for someone who is more versed. Now that is fine with me. However WHY did we come to TN?! I just dont get it. I am a bit rundown emotionally and right now i think i am going to take time to sulk and i will pick back up and be back in the game. As for Kenadie. We are told it is not going to make her "DECOMPOSE" so i am going to back off trying to find an answer right now. There may never be a true answer for what is going on and you know as long and she is happy and her O2 levels can bounce back. I am good. I am just so disappointed.