How to summarize K's past few weeks..

Hello all. First let me say my apologies for not updating like a good lil momma should. I am mark my words going to do better. Since we have a diagnosis I am going to try and update our blog at least once a week. I will be writing about our feeling, what's been going on, the life with an AD kiddo, and just life in general.
So Kenadie was to have a heart appt on August 24th for her 8 month post op appt. Well we were having some problems with kenadie on the friday before hr and pulse ox. So i just watched her more. Saturday was horrid. 10 alarms with a hr going down in the 60's. Then i got nervous and told dh that we need to go to texas early sunday. I was not feeling comfortable with this. We got their sunday and she had this rash all over her body. She has been in anaphelatic shock before so nope mom does not play with rashes. So I rush her to Dallas ER and her hr is nuts. We get their and they swear it is not an allergic reaction. (rolls eyes whatever) But then got concerned by her hr dipping. So that bought us an overnight stay with a whacko. Well the whacko doc did not know what deteriorated motility means (slowed down) of the intestine. So she brady's and becomes unresponsive at 49bpm. They call a met team and rush her up to the CCICU. Her core temp was 94.1F so yes. We were having some issues. Then 1 day passes and the lovely does not have one spell. Temps were so so. So we got to go down to the regular floor. The moment we get down there BAM she goes back down to 94.1 and hr of 49bpm. SHIT! So they rush around the P1 resident almost pisses her pants she has only been on the job less than 2 months. Then she stays brady 2 hours later. Why we didn't know. Her temp was 94F then too. So missy was hypothermic and trust me our room was no ice cube. They had doc order to have it 80+F in there. It was a sauna! lol. Then the stupid stupid people call dhs on us because we were not at a local hospital. Lord that is a long one. But needless to say after calling my attny and the hospital administrator and having my fil gripe people out. It was solved. So no we aren't looking for attention, yes i want my baby, no i am not an alcholic, yes i wanted the pregnancy, and yes i am on an antidepressant and yes i am a damn good mom on it! LAter we found out their reasoning was so discremanatory that it was unbelieveable. Pedi has it on a recording for me. They claim they were worried bc i am on a antidepressant for postpartum depression. WEll hell yes,.. Look at the hell i have been through. NExt! So Finally we get a diagnosis. They claim the missy has an autonomic disorder. And she lines right up with it too. So now we will be in and out of hossy again trying to get things tinkered with. It does not get better it stays the same or gets worse. We are testing for a metabolic do too bc they can have similar stuff but her pedi is almost 100% that we have an AD. which it blows but hey we do what we have to do.
Right before we came home they wanted to put k in a children's nursing home essentially. Umm NOPE! Not my kiddo! I unkindly let them know how i felt about that. She is my child and hell no! It has been a rollercoaster from hell lately. We are headed back to dallas tomorrow for our stomach stuff. PRay that SW stays out of my room cause if not.. Please bail me out of jail! lol. I will try and keep my blog updated. Thanks so much for the overwhelming support! Please email us at hancock_alisha@hotmail.com or campaignkenadie@hotmail.com we would love to hear from ya!