Hello all. So we are in dallas right now. We got down here about 730 pm last night and we are at the ronald mcdonald house. Everyone who has seen her comments on how big my little one is getting. We seen dr nutchent today. And well we dont have any answers right now. He wants to do a sedated echo on 2/16/09. He says we can then get a good measure of pressure in her heart and see what exactly is going on. Should she go into distress before then they would obviously move it up. He said if you look at her outward appearance you would not know that the lil miss has a heart defect. But this is the same baby that you really could not tell she was in total heart failure either. Then he thinks we have another issue dealing with weight. He says it could be something hormonal, malabsorption, or some minor disease. Okay you can not just throw out a disease word and expect me not to freak out. But i am trying to stay calm till we have answers. It is just that kenadie does not do so good when you throw % at her. Only 1% of babies have a congential heart defect and 3% of those have to have them repaired and of those 3% only .5% go into heart failure before their operation. Hmm let me see here... We are not doing so well with percentages. So no rolling the dice with my kid. So i am left with no answers again. We dont understand what is going on with ms kenadie. My heart and my mind and really exhausted right now. I am trying to be strong for her but i am just tired.
Being here at the ronald mcdonald house (rmh) is really a humbling experience. It helps in a sense and then just makes me down right pissed. I mean why does a 1yro have to have cancer???That child has not even gotten to go potty on a regular potty. Ride a bike, have fun with mom or dad? I just dont get it. And you know through this process these moms here have never made us feel like our problem is small. They just support you through it. I do ask for prayers for the kiddos here. There is a few cancer kids and a few transplant kiddos. WEll princess kenadie is sounding off. Gotta go.
Subscribe to:
Post Comments (Atom)
3 comments:
{{HUGS}}
Continued hugs and prayers for you and Kenadie. She is a fighter just like Mom.
Many prayers for all the children at RMH as well.
Hey Alisha!
I haven't commented in awhile, but I want to let you know that I think about you and Kenadie all the time and have said many a prayer for the both of you. You are both in my thoughts and prayers as well as the children at the rmh. (((HUGS))) Jen
Post a Comment