We are back from dallas!

My ms kenadie while getting her tube feeding before going to see dr. nutchent in dallas. :)

So we finally made it back from dallas. We were greeted with a wonderful ice storm on monday preventing us from coming back home. Then on tuesday more of the same and the highways were shut down. Then dallas got hit on Tuesday night wednesday morning. But by the afternoon we were determined to come home and drive slow. So a drive that should have only been 3 hours turned into about 5 hours long. Not cool for a baby who is having issues with her G tube. Sunday night her G tube started bleeding around the site and is causing pain to her. So that made for a fun and interesting trip. The ladies at the RMH were awesome when she was being cranky. There was always someone asking to take her off my hands. One of the mothers said it helped her cope since her baby was in the NICU due to prematurity and she could hold and love on kenadie. I was like girl go ahead. :)

I spoke with kenadie's pedi last night on the phone and we chatted about the update and what to do. She would like kenadie to go ahead and have the chromosonal testing done just to rule that out. I personally dont care what the results are as long as we have an answer and how we can go about getting her treatment under control. kwim. When we talked she said she thought kenadie did not have the outward appearances of syndromes but she has seen babies without them. So we just have to remain positive about everything.

I love my baby so much and it really takes alot out of me to know something may be wrong and to see her in pain. I get so frustrated and angry with the whole thing. My heart just kind of aches right now. One thing we are doing right now is just trying to live our lives normally. As normal as you can get with doc appts and nurses being in your house.

well i will update more when i get back from her appt. it is at 130pm cst. sorry it is so scatterbrained.