Well i guess i knew our steps backwards were coming!

So i guess the title is what it says. I could not drag myself to get on the computer yesterday. So the doc came in on friday and was like eh maybe you could go home on sunday with home health. So i was like whatever i am not getting my hopes up because i know my child. So yesterday morning she comes in checks her out.. says lets take one iv out and leave the other in.. wean her on some pain meds and then mom get the lessons on her feeds. Great. So an hr later the nurse comes in to do her vitals and does her temp. 101F.. WHAT?? Come again. So she leaves comes back in an hr.. 101.3F damn! So all day yesterday she ran a temp. And she was already gettnig tylenol and stuff so her pedi is concerned about infection in her insicion because it is already red and warm. So they are now doing bw this morning and a urine analysis to see if her blood count is where we need iv antibiotics versus her oral ones that she was getting. Her pedi seems to think her body is not responding to the oral ones.
Oh and the damn nurse tech took the wrong iv out yesterday! I was pissed. She took out the one that WORKED! So now they have to restick my daughter so that she can have her iv pain meds because her pain is worse today. Plus they have to give her some more iv lasix because she started swelling again last night.
My poor pedi came in our room today and asked about how i felt. Wrong question to ask me. You have your ups and downs in the hospital and well today is one of those down moments. In some ways i feel like i have let my daughter down. She is in pain sometimes. She has all these issues and i often wonder if i should have ate something more or less. Took some more vitamins.. Did something to prevent this! I never imagined that my daughter would have to eat through a tube. Nor did i think that i would sit and worry about my daughters heart every moment. I am just not a happy camper right now.
So maybe we can look at going home this week sometime.